How tongue tie division changed our life!

Louie was born on the September 2010 by elective c section at 37 weeks, weighing 7lb 15oz.  I was warned of several potential problems at delivering the baby so early, such as-breathing issues, sleepy baby, jaundice etc, but because I had a T cut section with my 2nd son I was not able to go further than 37 weeks.  I had steroids to mature Louie’s lungs at 36 weeks.

There were no issues at all when he was born, the c section was lovely and calm, he had skin to skin in theatre and other than being cold at birth he was in great condition.  He was very sleepy after the birth but I was told to wake him up to feed every 3 hours.  He had jaundice until he was 7 weeks old, this was checked by a paediatrician and I was told breast fed babies can have jaundice until 16 weeks.

In the early days Louie was a frequent but very quick feeder, he fed well for a few minutes but then fell asleep at the breast, I put this down to him being a 37 week baby who was sleep and assumed he would ‘wake up’ and be more alert by his official due date.  Louie co slept and partially shared my bed from the beginning.

Louie did ‘wake up’ but it soon became apparent he was not a very happy/settled baby, feeding became a nightmare.  I have fed 2 other children, exclusively for 6 months and continued up to a year and never have experienced anything like how Louie fed.  I became very sore, not bleeding nipples but a terrible burning sensation that lasted throughout the whole feed, I thought I may have thrush but this was never diagnosed and I think I just got used to the feeling.  I also put it down to him feeding every hour, day and night (my nipples never had chance to recover!) I never really questioned how often he fed, although I was told to try and push him further on or offer him formula top ups but I didn’t because I’ve always taken the attitude that in much the same way as I don’t feed every 4 hours then neither do babies and again I kept thinking that it was because he was born early and things would improve.

Louie consistently gained weight (I was even told he was obese and I should formula feed him as this would mean I could regulate how much he fed, which is utter rubbish as he was born on the 25th centile and is still on it now) although he never had a big growth spurt as my others have.

Not only was Louie a frequent feeder but he was also a distressed feeder, he would wriggle, squirm, writhe, arch his back and fight me until finally becoming so distressed and hysterical that I had to stop feeding  and cuddle him until he calmed down – he was described as a “typical reflux baby”.  it was just a case of ‘riding it out’ as unfortunately nothing I or anyone else did could soothe him; after he had calmed down he would feed ok, still wriggly and almost uncomfortable but he would take some milk.

Afterwards he would be sick, (I had to have a bath towel to cover him and me) and full of wind.  At 7 months the  most he had ever slept on a night is 3 hours and this was very rare.  Throughout the night we had to cope with several screaming fits and again had to ride these out by cuddling him and swaddling him.  Louie spent much of the day crying and was very rarely content.  We tried a sling, Cranial Osteopathy, tilted mattress, infant gaviscon etc but nothing worked.

Louie refused all bottles (I tried them all) and dummies!  He could not bear them in his mouth and got very distressed, he would not even tolerate them touching his mouth.  He also refused a spoon completely, and although he appeared interested in food – seemed to struggle with it and so quickly discarded it.  Any that was swallowed was almost immediately vomited back!

A health Visitor told me she thought he may be tongue tied,  but then told me not to worry as it clearly did not bother him and he had always gained weight.   A doctor practically laughed me out of the surgery and dismissed me straight away, but the more I read about it the more everything just fell into place,  so I decided it was important to know for certain as then I could make an informed decision.

Charlie visited  on the Friday and confirmed there were significant indicators of tongue tie including visual shaping of the tongue.  After a thorough discussion Charlotte arranged tongue tie division privately for us,  and the (what we discovered to be) 85-90% tie was snipped by the Monday!

The procedure took seconds, bled only a few drops and immediately after Louie fed calmly and was still!!

The difference has been incredible and quite literally life changing. The first night he slept from 7pm until 6am (unheard of!!) and although he now, one week later occasionally wakes up, it is literally for a comfort feed.  He is sleeping pounds better during the day-3 naps of between 1 & 2 hours, and no screaming/hysterical fits at all.  Feeding is no longer a chore that I have to just ‘do’ it is now much more pleasurable for us both.  Louie is having Cranial Osteopathy tomorrow and I hope he will continue to settle down and become much more contented!

Further update 3 weeks later:

Feeding is 100% better with Louie now for both of us!  I  can’t believe how we managed for so long.  He is eating and enjoying lumpy foods  without any bother, he hasn’t been sick at all since the division and milk feeds are calm and pleasurable.  He is sleeping pounds better both day and night and I would now describe him as happy & content..the difference is amazing, I can’t thank Charlie enough and will recommend Milk Matters to anyone who is struggling.

Related Posts:

Is tongue tie the cause of your baby’s reflux, colic or wind?

Kate’s experience supported by Milk Matters

Comments

  1. Michelle says:

    Wow – I’m so pleased to be reading these stories which really could be me writing them! My lilttle one had his tongue tie (and upper lip) clipped this week and I’m hoping it may make all the difference to his feedinh and sleeping. Thanks for writing this for us to see your experience x

  2. I’ve never heard of this. Very interesting. Why is it that tied tongue can cause so many problems?

    Jenna
    momofmanyhats.blogspot.com

  3. My little guy has tongue tie too! Like you, I was told not to worry about it since it didn’t seem to bother him too much and we were managing breastfeeding fine. By the same token, our GP said he would do the division if I wanted him to. About 18 months later, we still have not and I still wonder if I should have had him do it but my little guy is still doing fine.

    The challenges were scary at first. I could see he was having trouble nursing and I didn’t want to worry my husband because our others didn’t really have such an issue. Also I didn’t want the rest of our family making a big deal out of a relatively small issue.

    Great job pushing through the tough times and finding a solution yourself. More often than not, I think it is best to be your own advocate and of course the advocate for your baby. If you aren’t, who will be? I am so glad you found the simple solution for you and Louie and that it made such a dramatic difference for you both. :)

  4. Is it necessary to shout?Really?Either way, it depends on the baby. If this baby doesn’t seem to be growing as she should, then one of two things is happening: either the baby is underfed, or there’s something else.Some babies wake up. Others are lazy nursers who have to be woken up. I didn’t have to wake Andy, but a friend of mine from high school did have a lazy nurser. The doctor told her that she had to be woken up to eat because she wasn’t gaining as she should.If the kid isn’t growing as normal, then the first place to look is feeding. After all, start with the simple things before adding extra human growth hormones to the mix. It’s reasonable to start with the easiest explanation first.